Written by: Alisha Berg
I’m Alisha and I’m a married mom of a beautiful four year old little girl. My daughter Regan is a very special little girl. In Novemebr of 2012 Regan was born. She came into this world the colour grey and not breathing at all. My whole world changed that day. Regan was whisked away to the NICU and stayed there till she could be transferred to a different hospital and we stayed there for about six months! So much happened during that time that altered my life, her life and my whole family life. Regan was intubated (had a tube down her throat towards her lungs) for almost 4 months and she was trached (had a tracheotomy tubed placed in her neck so she could breathe)in month 4. She also in the beginning had a nasal feeding tube which was then transferred to a GJ tube (a tube in her stomach that connected to her jejunum bypassing the stomach). A month after she came home the GJ became a G tube with a Mic-Key button (a tube that allows food into the stomach). Regan also has been on a ventilator during her 4 years. She started out on it 24/7 during intubation period and the start of her initial trached period but now she only uses it at night because she has central sleep apnea (where her brain forgets to breathe every so often).
During the six months in hospital we spent may days wondering if she was going make it. They lost her heartbeat a few times, she needed a lot of oxygen in the beginning and so many other things happened along the way. When Regan was trached we then learned how to inline suction while she was vented, use a normal suction which is now our everyday normal. We learned how to use a feeding pump and hook it up to her tube and extension so she could get her nutrients in. Then there were the months of vent training. So in depth and so much to learn it was very overwhelming but the support I had was incredible and the prayer team covering Regan, my family and myself was incredible!
Jeremiah 29:11 “For I know the plans I have for you” declares the Lord. “Plans to prosper you and not to harms you, plans to give you a hope and a future”
Until Next Time,